Pat says…
Since the beginning of my journey as a young adult cancer awareness advocate, I have travelled across Canada and throughout the world, encountering many young adult cancer patients, survivors and caregivers who are telling their own stories. Keeping up with all the material is an exciting challenge! I offer here a selection of resources with which I am personally familiar and which I recommend. All have one thing in common: the catalyst was/is a young adult voice.
ON FILM
- Chasing Rainbows: Young Adults Living with Cancer (Chasing Rainbows Production, 2006): the film’s official site, linked above, contains detailed background on the project (Note: this is an archive site and has not been updated recently). The DVD is available in English, French or English with Spanish subtitles); you can purchase it by e-mailing Pat directly (pat@chasingrainbows.ca). You can also view the film online (in sections) in English, French or Spanish at jimmyteens.tv.
- Sara’s Story (Infinity Films, 2000): a 60-minute documentary that follows 25-year-old Sara Taylor and her family over the course of two years, through her diagnosis with a rare form of cancer, her treatments, surgery, and beyond. Sara’s Story is available for FREE download here. Note: link goes to a Dropbox download page, but you do not need to be a member of Dropbox yourself to preview and/or download the film. If a “create a Dropbox account” window pops up, just click the link at the bottom that says “no thanks, continue to view”. Note #2: once you’ve downloaded and are watching the complete film, you will see that it fades to black every once in awhile, in the spots where the TV broadcast version went to a commercial break. Don’t worry – it’s not over. Just wait a few seconds and the next section will begin!)
- Films by Survive & Thrive: Wrong Way to Hope (2009), Ebb & Flow (2011), Valleys (2013), How To Win A Tickle Fight (2016)
- I Am Anna (ReThink Breast Cancer, 2015
- I’m Still Here: Young Adults Living Life With Recurring Cancer (Callanish Society, 2015)
- I Don’t Have Time for This! (Big Coat Media, 2010)
- “Missed”: Stories of Young Adults with Cancer (Alpheus Media, LIVESTRONG Young Adult Alliance, 2010)
- About Her (Rethink Breast Cancer, 2011)
- The Fault in Our Stars (Temple Hill Entertainment, 2014)
- Ebb & Flow
IN PRINT
- Everything Changes: The Insider’s Guide to Cancer in Your 20s and 30s (Kairol Rosenthal, 2009)
- Cancer in Young Adults: Through Parents’ Eyes (Anne Grinyer, 2002)
- Palliative and end of life care for children and young people (Anne Grinyer, 2012)
- Planet Cancer: The Frequently Bizarre Yet Always Informative Experiences and Thoughts of Your Fellow Natives (Heidi Schulz Adams & Christopher Schulz, 2010)
- I’m Still Me: A Guide for Young People Living with Cancer (MacMillan Cancer Support, 2010)
- Cancer Under the Radar: Young Adults Tell Their Stories (Cedars Cancer Institute, 2010)
- What About My Kids? A Guide for Parents Living with Breast Cancer (Linda J. Corsini, 2006)
- We’re In This Together: A Caregiver’s Story (Rob Harris, 2012)
- Things I Wish I’d Known: Cancer Caregivers Speak Out (Deborah J. Cornwall, 2012)
- The Fault in Our Stars (John Green, 2012)
- being single, with CANCER: a solo survivor’s guide to life, love, health & happiness (Tracy Maxwell, 2014)
- The Half Book (He’s taking his ball and going home) (Dan Duffy, 2016)
- In the Shadows: How to Help Your Seriously Ill Adult Child (Patricia Ringos Beach & Beth E. White, 2013)
ONLINE: Live Streaming Radio & TV, Resource Hubs & Networks
- Stupid Cancer.org (NEW: check out the Stupid Cancer App created by Gryt Health!
- Young Adult Cancer Canada (YACC)
- Cancer Knowledge Network
- Canadian Cancer Survivor Network
- Imerman Angels
- Teen Cancer America
- CanTeen (Australia)
- Critical Mass: the Young Adult Cancer Alliance (US, formerly the LIVESTRONG Youth Alliance)
- JimmyteensTV (Teenage Cancer Trust, UK)
- massKickers
- Good Times & Bald Times (YouTube: search for Seattle Children’s Hospital channel)
- Annie Appleseed Project: Natural Therapies From the Cancer Patient Perspective
- Cancer Fight Club
- Cervivor (formerly Tamika & Friends)
- Testicular Cancer Awareness Foundation
- Cedars CanSupport
- Young Survival Coalition
- Solo Survivors: Support for Singles Dealing With Cancer
- Children’s Brain Tumor Foundation
- Testicular Cancer Canada
- The Pink Pearl Foundation
- Testicular Cancer Foundation
- Testicular Cancer Society
- Alli’s Journey
- MyLifeline.org
- Canadian Virtual Hospice
- Canadian Association of Pyscho-Social Oncology (CAPO)
IN PERSON: Speakers, Support Groups & Retreat Experiences
- Team Shan
- Testicular Cancer Canada
- First Descents
- Callanish Society (Vancouver, BC)
- Hope & Cope (Jewish General Hospital, Montreal)
- Cancer Fight Club
- Nanny Angel Network
- Sharsheret
- Camp Mak-A-Dream
- Survive & Thrive Expeditions
- Project Koru
- The SAMFund
- VOBOC – Venturing Out Beyond Our Cancer (Montreal)
- Epic Experience
- The Robin Cancer Trust (UK)
May I share your link to these resources with others on our website?
I am pretty sure I replied to you elsewhere, but just wanted to say publically in case anyone else has the same question: yes, please feel free to link to this list wherever you think it might be of use!
Hello! Thank you for introducing us to resources we had not known about, as well as giving us a look back to Mike Lang’s first documentary. We have placed these resources as well as the links to the new Valleys series on our site. Might we ask you to add The SAMFund for Young Adult Survivors of Cancer to your resource list for Support Groups, above. Thanks!